In 2018 we received a gift from heaven and heard the term "Cornelia de Lange Syndrome" for the first time in our life; our son Daniel had been diagnosed with this syndrome, and immediately, we were confused and filled with questions; since the occurrence of CdLS is estimated to be 1 in 10,000 live births, there weren't many doctors that knew about it, and many questions remain unanswered at birth, making it one of the scariest situations.

Shortly after, we found the Cornelia de Lange Foundation, dedicated to research and supporting families or anyone touched by this little-known genetic syndrome.

Through the foundation, we were able to get educated about the syndrome. They have provided critical information that has helped us give Daniel the proper care to thrive.

Last year Daniel suffered from an intestinal anomaly common in children with his diagnosis. He nearly died, but thanks to God and Daniel's resilience, he fought, survived, and is now thriving. He is my #1 inspiration in life. Today, I am drawing from that inspiration and decided to run the 2022 Chicago Marathon in his honor.

I couldn't find a better way to do this than running with the CdLS USA team; my goal is to raise awareness about the syndrome and raise 1,750 USD for the Cornelia de Lange Foundation, so they continue to be a blessing to other families.

Your support in any capacity is greatly appreciated! 100% of the funds raised will go towards the Cornelia de Lange Foundation and help families receive tools to navigate the challenges associated with the Cornelia de Lange Syndrome.

Please help me reach our goal by making a donation, sharing this page on Facebook and Twitter, or sending an e-mail to friends you think might be interested in contributing!

Thank You!