When sweet Lyla Jimenez was born in March 2017 her family was filled with concern over her CdLS diagnosis.

“I became very depressed when I realized she may never walk or talk. I finally reached out to the CdLS Foundation, and they were so kind. They listened with an open heart as I cried and spoke about my fears for my granddaughter. They have given me the emotional support, and the tools I need to learn about this syndrome,” explained Lyla’s Grammy, Cheri Scott.

The caring team at the CdLS Foundation makes it their heartfelt mission to guide families along their journey and through the various challenges and concerns that individuals with CdLS may experience throughout their lifetime.

"I support the CdLS Foundation because it has been the backbone - offering us the help we need to navigate life with a child/grandchild with CdLS. I will be forever grateful for this Foundation!” – Cheri Scott

As the only non-profit organization in the country dedicated exclusively to this rare genetic syndrome, the CdLS Foundation could not continue its important work on behalf of the families and individuals with CdLS if it were not for the support and kindness of donors like you.

Today we celebrate CdLS Awareness Day. Your generous donation will help make an impact on every individual with CdLS, like Lyla, whose family reached out to the CdLS Foundation for help.