We aim to make this year’s pig roast the most memorable one yet—and also the one dearest to our hearts. We’re asking our friends and family to consider donating to the CdLS Foundation in honor of our son Charlie.

The Foundation has been a great support to us since Charlie’s diagnosis. Through them, and especially through the biannual CdLS conference, we have been given access to experts, gotten essential information in how to best care for Charlie, and been able to meet and connect with many other CdLS families.

The Foundation provides a scholarship to families with a new diagnosis for their first conference. Our first conference was really a turning point and gave us so much hope and confidence, and gave us a new “CdLS family” to lean on. We hope to raise enough to fund at least one family’s first conference.

Thank you for your generous donations! They will go a long way!